Thank you for sharing, Lo. I was diagnosed with endometriosis 8 years ago and have recently found out that I have 5 fibroids. I’m in a lot of pain and probably on the brink of having another surgery. I appreciate you being so open about this, and allowing space for other women to find community despite the hardship. Wishing you a speedy recovery!
Thank you Lo 💛 I was lucky to be diagnosed early in my late teens, but have been stage 4 since that diagnosis. Many surgeries. And, against my true wishes, a hysterectomy. Since my hysto, I’ve had another surgery of 21 excisions of endo all over my organs just this past November. I hope to find a day where this is less all-consuming for me. Where I feel like a normal healthy human being. We need more people like you to speak up and speak the TRUTH! This isn’t just a bad period. There aren’t always obvious symptoms. A hysterectomy is NOT a cure. There is no cure. Yet we all keep going, we all keep living, we all keep fighting for our right to be here happy and healthy and disease free 💛💛 Truly. Thank you.
I was diagnosed in January with endometriosis and had many of the same symptoms as you. I went to the doctors 5 years ago with a cyst the size of a plum and was told that this was normal. Thank you for spreading awareness. I hope we all get more answers as the years progress 💕
Hi Lo, thank you for sharing! I am also in my mid 30s and have suspected I have endometriosis for years. The lack of clear diagnostic tools and options for those of us who don’t plan to bear children are regrettably limited. I hope you continue to have a smooth recovery. Also please consider blocking out your personal health information (MRN and CSN) in the photo as people maybe be able to use this info to gain access to your health information.
Thank you. I frankly find it unacceptable that there hasn't been more research into the root cause of endo or better treatment options. I am sick of being told that birth control, Orlissa (which you can only take for 2 years), or surgery are our only options. Dr's diminished and brushed off my symptoms for twenty years. I'm actively looking for biotech's/pharma focused on women's health and finding better solutions... anyone know of any?? I'd appreciate any info.
Thank you so much for sharing! So grateful to have your advocacy on this! Sending you all the healing vibes!
(Happy pregnancy story) After a miscarriage and two D&C’s, I was diagnosed with Ashermans syndrome. After two surgeries on my uterus, my surgeon also advocated that I get a laparoscopy because she was highly suspicious that I had endometriosis. She was right. I had stage 4. It was a total shock for me as well! Good news- I had my surgery in September and I’m now 13 weeks pregnant (IVF transfer in late December) and I feel so incredibly grateful that my surgeon advocated for me to get the surgery before wasting any precious embryos and other tragic miscarriages. Baby girl is due in September! Shout out to Dr. Mona Orady in San Francisco. She is my angel! I’m convinced I’m here because of her!
Thank you so much for sharing and I’m so sorry your recovery has been so tough. I had stage 3 endo removed before we began IVF and though the surgery sucked I can say that I’m practically pain free during my period 3 years later. It’s life changing and I wish I had done it sooner. CCRM gave us our son - Good luck to you!
I felt resistance from several doctors to diagnose me with anything due to my weight. When I did lose weight, my symptoms worsened. I ended up having a hysterectomy (my baby days were finished thankfully) and it wasn’t until my post op appointment that my obgyn told me I had endo but on the inside of my uterus (also known as adenomyosis). The relief and youth I have again is amazing and I’m so thankful to have it behind me. Wishing you a speedy recovery ❤️🩹
Thanks for sharing your story! I recently had my excision surgery 3 weeks ago, confirmed stage 1. I felt so validated, FINALLY after 10 years of struggling. I’m definitely still in the early healing stages but I totally agree about the shift in energy after surgery. It’s like the thick fog in my brain has been lifted, I didn’t realize just how fatigued I really was before this!
Thanks for sharing your story. Sending you all the love and strength in the world. I had awful periods for years and years - fobbed off to the point of going private. Paid a fortune for tests etc was told the best thing I could do is get pregnant (I was 28 and dating so no!). Great advice. Exercise and vitamins did help me but every month the dread of period pains remained. I then tried for a baby at 32 and that’s when everything really unraveled (discovered blocked tube, told to do IVF, experienced loss and issues) until I was blessed with a daughter. I can’t deny that my symptoms are significantly better since having a baby BUT I’ve been told that after a few months it could return to how it used to be (I’m only 5 months post baby). Every woman is different. There’s no where near enough awareness or funding for women experiencing this - it’s truly shocking. The impact on our lives is massive. I really hope you continue to recover and wish you all the best! 💗
I can’t express how grateful I am for your story. I’m praying today is the day I finally get my diagnosis. I’ve been in four different hospitals over the past 20 days—dismissed each time and left in crippling pain. I just turned 28, and your 10-year journey and the disconnect from symptoms really hit home.
Your story has been pinned in my inbox for weeks, and when I landed in the hospital the first time, it made me pause and reflect. I’m sending you light and love on your healing journey. Your words are helping me advocate for myself even more fiercely.
We women need to stick together. I work in CPG and care deeply about the intersection of logic and health. I’ve also been a longtime buyer and subscriber of Love Wellness—thank you for that, too.
Thank you for sharing your story! I’m in my mid 30s and was recently diagnosed (with suspicion for years). Funny how the universe works to get diagnosed this month during awareness month :) It’s the worst pain I’ve ever felt and I’m working through it with my doctor, but I’m so glad to have a diagnosis and plan of action. I’ll be getting surgery in a few months to hopefully alleviate some pain and allow for natural conception before looking into IVF. Feeling optimistic and positive to get through this tough time. Best of wishes and hugs to all you ladies 🩷
Thank you so much for sharing and bringing more awareness to endo. I was lucky to be diagnosed in my early twenties thanks to an amazing doc who listened (why is that so hard to find?!). It still amazes me how little people know about this disease, and I’m hopeful that people like you with a platform to speak on will help the cause. Thank you for being brave and giving us all a little bit of hope for future endo warriors 🫶🏻
PLEASE PICK ME FOR YOUR GIVEAWAY!!!! I REALLY want to win and would be soooooo grateful and appreciated of the prizes in the haul!!! I love you Lo & ALL the love wellness products!! I love purchasing the new love wellness products especially from Target 😍❤️ AGAIN PLZ PLZ PLZ PICK ME FOR THE GIVEAWAY 🤞🫶🤞🫶🤞🫶🤞🫶🤞🫶🤞🫶🤞🫶 I’m praying for this 🙏🙏🙏🙏🙏
Thank you for sharing, Lo. I was diagnosed with endometriosis 8 years ago and have recently found out that I have 5 fibroids. I’m in a lot of pain and probably on the brink of having another surgery. I appreciate you being so open about this, and allowing space for other women to find community despite the hardship. Wishing you a speedy recovery!
I hope you are able to find some relief soon. Remember your laxatives LOLOLOO. Sending love.
Thank you Lo 💛 I was lucky to be diagnosed early in my late teens, but have been stage 4 since that diagnosis. Many surgeries. And, against my true wishes, a hysterectomy. Since my hysto, I’ve had another surgery of 21 excisions of endo all over my organs just this past November. I hope to find a day where this is less all-consuming for me. Where I feel like a normal healthy human being. We need more people like you to speak up and speak the TRUTH! This isn’t just a bad period. There aren’t always obvious symptoms. A hysterectomy is NOT a cure. There is no cure. Yet we all keep going, we all keep living, we all keep fighting for our right to be here happy and healthy and disease free 💛💛 Truly. Thank you.
Thank you for sharing 💗 we’re here for you
I was diagnosed in January with endometriosis and had many of the same symptoms as you. I went to the doctors 5 years ago with a cyst the size of a plum and was told that this was normal. Thank you for spreading awareness. I hope we all get more answers as the years progress 💕
Not normal 💗💗💗 so glad you finally got the diagnosis you needed
Thank you for sharing. I too had endo and subsequently a total hysterectomy. I DID NOT KNOW that it could still come back.
I was surprised by that also. I assumed it would be the final fix but I guess not!
Hi Lo, thank you for sharing! I am also in my mid 30s and have suspected I have endometriosis for years. The lack of clear diagnostic tools and options for those of us who don’t plan to bear children are regrettably limited. I hope you continue to have a smooth recovery. Also please consider blocking out your personal health information (MRN and CSN) in the photo as people maybe be able to use this info to gain access to your health information.
Thank you so much for this — sometimes it feels like no one takes this pain seriously. Wishing you the very best ❤️
Couldn’t agree more xo
Thank you. I frankly find it unacceptable that there hasn't been more research into the root cause of endo or better treatment options. I am sick of being told that birth control, Orlissa (which you can only take for 2 years), or surgery are our only options. Dr's diminished and brushed off my symptoms for twenty years. I'm actively looking for biotech's/pharma focused on women's health and finding better solutions... anyone know of any?? I'd appreciate any info.
Thank you so much for sharing! So grateful to have your advocacy on this! Sending you all the healing vibes!
(Happy pregnancy story) After a miscarriage and two D&C’s, I was diagnosed with Ashermans syndrome. After two surgeries on my uterus, my surgeon also advocated that I get a laparoscopy because she was highly suspicious that I had endometriosis. She was right. I had stage 4. It was a total shock for me as well! Good news- I had my surgery in September and I’m now 13 weeks pregnant (IVF transfer in late December) and I feel so incredibly grateful that my surgeon advocated for me to get the surgery before wasting any precious embryos and other tragic miscarriages. Baby girl is due in September! Shout out to Dr. Mona Orady in San Francisco. She is my angel! I’m convinced I’m here because of her!
Thank you so much for sharing and I’m so sorry your recovery has been so tough. I had stage 3 endo removed before we began IVF and though the surgery sucked I can say that I’m practically pain free during my period 3 years later. It’s life changing and I wish I had done it sooner. CCRM gave us our son - Good luck to you!
I felt resistance from several doctors to diagnose me with anything due to my weight. When I did lose weight, my symptoms worsened. I ended up having a hysterectomy (my baby days were finished thankfully) and it wasn’t until my post op appointment that my obgyn told me I had endo but on the inside of my uterus (also known as adenomyosis). The relief and youth I have again is amazing and I’m so thankful to have it behind me. Wishing you a speedy recovery ❤️🩹
Ah, some classic medical gaslighting. Relieved you feel better 💗💗💗
Thanks for sharing your story! I recently had my excision surgery 3 weeks ago, confirmed stage 1. I felt so validated, FINALLY after 10 years of struggling. I’m definitely still in the early healing stages but I totally agree about the shift in energy after surgery. It’s like the thick fog in my brain has been lifted, I didn’t realize just how fatigued I really was before this!
Thanks for sharing your story. Sending you all the love and strength in the world. I had awful periods for years and years - fobbed off to the point of going private. Paid a fortune for tests etc was told the best thing I could do is get pregnant (I was 28 and dating so no!). Great advice. Exercise and vitamins did help me but every month the dread of period pains remained. I then tried for a baby at 32 and that’s when everything really unraveled (discovered blocked tube, told to do IVF, experienced loss and issues) until I was blessed with a daughter. I can’t deny that my symptoms are significantly better since having a baby BUT I’ve been told that after a few months it could return to how it used to be (I’m only 5 months post baby). Every woman is different. There’s no where near enough awareness or funding for women experiencing this - it’s truly shocking. The impact on our lives is massive. I really hope you continue to recover and wish you all the best! 💗
Hi Lo,
I can’t express how grateful I am for your story. I’m praying today is the day I finally get my diagnosis. I’ve been in four different hospitals over the past 20 days—dismissed each time and left in crippling pain. I just turned 28, and your 10-year journey and the disconnect from symptoms really hit home.
Your story has been pinned in my inbox for weeks, and when I landed in the hospital the first time, it made me pause and reflect. I’m sending you light and love on your healing journey. Your words are helping me advocate for myself even more fiercely.
We women need to stick together. I work in CPG and care deeply about the intersection of logic and health. I’ve also been a longtime buyer and subscriber of Love Wellness—thank you for that, too.
Annie
Thank you for sharing your story! I’m in my mid 30s and was recently diagnosed (with suspicion for years). Funny how the universe works to get diagnosed this month during awareness month :) It’s the worst pain I’ve ever felt and I’m working through it with my doctor, but I’m so glad to have a diagnosis and plan of action. I’ll be getting surgery in a few months to hopefully alleviate some pain and allow for natural conception before looking into IVF. Feeling optimistic and positive to get through this tough time. Best of wishes and hugs to all you ladies 🩷
Thank you so much for sharing and bringing more awareness to endo. I was lucky to be diagnosed in my early twenties thanks to an amazing doc who listened (why is that so hard to find?!). It still amazes me how little people know about this disease, and I’m hopeful that people like you with a platform to speak on will help the cause. Thank you for being brave and giving us all a little bit of hope for future endo warriors 🫶🏻
PLEASE PICK ME FOR YOUR GIVEAWAY!!!! I REALLY want to win and would be soooooo grateful and appreciated of the prizes in the haul!!! I love you Lo & ALL the love wellness products!! I love purchasing the new love wellness products especially from Target 😍❤️ AGAIN PLZ PLZ PLZ PICK ME FOR THE GIVEAWAY 🤞🫶🤞🫶🤞🫶🤞🫶🤞🫶🤞🫶🤞🫶 I’m praying for this 🙏🙏🙏🙏🙏